Clinic and Echocardiogram

Update: Emily had her monthly visit with the hospital! It's nice she doesn't have to visit often. 

Yesterday she had her scheduled echocardiogram to see how her heart was looking after 4 years of treatment. We knew we would have to wait until meeting with Dr Gowda today to see how it went. After her appontment yesterday she was extremely exhausted so dad picked her up and she spent the rest of the day with her dad and taking a nap!

This morning she had clinic and her monthly physical with Dr Gowda. We went over results of her echo and he was very happy with how it looked from 2 years ago so that is great! She has her port accessed and counts checked. She also gave her urine for HMA/VMA markers! Dr Gowda was happy with how she is doing and is happy with us continuing on what we are doing!  She has complained of back pain, feet hurting and tummy pain here and there but nothing in her counts are showing issues! Results for HMA/VMA should be back in 7-10 days!

Overall Emily is doing well and enjoying school and her friends. She is loving that she does not have to visit the hospital as often and we are too. However with the flu we are watching closely because with a fever she needs to go Inpatient!

Hoping everyone is enjoying their New Year!