Doctors never gave us a promising outlook on Emily's diagnosis and said she only had 20%! To look back now I don't know if we ever knew that 5 years later that today Emily would still be here with the grim outlook on her life that was given. We still worry that although we are at the 5 year mark that dad and I could be going through more grueling treatment with her and she not have more Christmas', other holidays and special events to enjoy together as a family. Emily deserves to have another 5 years and another 5 years after that.
While she has never reached No Evidence of Disease, her dad and I are happy with stable, but we still wait to hear those words so that it could means in hopes it could bring down some of our worries of knowing it can come back.
If you don't know Emily, she really is an amazing child! No her dad and I are no biased by any means, we just know who she is and what she is all about and that heart she is is above and beyond most children her age I know. As an 8 year old she knows more than most would her age, and she has lived and gone through more than most adults have.
For the last year and a half Emily has been on DFMO and has lived a stable life, living life to the fullest, attending school and even did cheerleader this year for the first time! We couldn't be more proud of her. We continue to visit the clinic on a monthly basis unless something comes up where we may need to make ER visits.
Today Emily is looking forward to Christmas with her family and happy that she is not in the hospital. She continues to think of the other children who are in the hospital fighting the fight! This post could go sad or happy and honestly I would rather see it happy because if you look at Emily she has that beautiful smile she always has!!
Please continue to keep Emily in your thoughts!!
Happy Holidays!
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